Tyson Hugh Hooper

Tyson Hugh Hooper
Our son, Tyson Hugh Hooper, was born with coarctation of the aorta, hypoplastic arch, and a transitional avsd. His first open heart surgery reconstructed his aorta and was on day 9 of life. His second open heart repair was not anticipated to be needed until two or three years of age. Ty had other plans. We spent the vast majority of his first 3 months of life at Vanderbilt as he went into heart failure and was diagnosed with pulmonary hypertension. As a result, the medical team concluded that he needed the repair much sooner than usually recommended, and at just shy of 3 months old Ty underwent his second life saving open heart surgery. God has already worked so many miracles in Ty's life and the life of our family and we know he is using our story. Because of this, we are grateful for Ty's special heart and feel beyond blessed that God chose us to travel this road. We ask for prayers as Ty continues to heal. We are praying for a full recovery and life without restrictions for Ty. We are praying for God to use our family and Ty for His glory.

Thank you to each and every person who supports us through prayer, giving, or just by loving on our family! We are humbled and blessed by all of the ways the Lord is providing for us and know that he is using Ty and his story to do great things!

Sunday, March 29, 2015

It's been a big day already

Our main man is "eating like a champ" according to his attending this morning!  Rounds were awesome will all good reports and we upped his breast milk intake again.  

Ty found his thumb for the first time and we were actually there with the camera to catch it!  He thought it was the best thing he'd ever done, but then lost it again.  He's been eating his hands when he's ready to eat - we love it!

The biggest news of all is that this happened...

Because of his great condition and my tearful plea, the wonderful nurses and doctors worked a little NICU magic to waive some rules so the girls could have a QUICK encounter with their baby brother.  We were on our way to the park when we got the call that the charge nurse had approved and Ava Grace said asked where we were going.  When we told her she was going to get to meet her brother, she was so crazy excited!  She said, "Oh my goodness!  This is so much cool!  This is better than the park!"  
 Ava Grace had to be carried in - wasn't even allowed to touch the floor - gotta protect all the little ones from germs.  Her Daddy held her up at a safe distance so she could examine baby brother.  Then we got a couple family shots and he took her back out.
 They deemed Lily old enough and healthy enough to scrub and gown up and to get to hold him....
...and it just happened to be time for mommy's milk, so she got to do that too!

We feel blessed beyond belief that the girls got to meet their brother and hold him before his surgery tomorrow.  This is the best day yet!

Now, on to Ronald McDonald House Easter Fun Day!  Egg hunt, face paints, and bouncy houses are on the agenda.  :-)  Then back to the NICU for more rocking time for this mama!


Paige said...

Love the updates ... Prayers everyday for you guys. Please let me know if I can do ANYTHInG !!
He is a handsome baby boy...