Tyson Hugh Hooper

Tyson Hugh Hooper
Our son, Tyson Hugh Hooper, was born with coarctation of the aorta, hypoplastic arch, and a transitional avsd. His first open heart surgery reconstructed his aorta and was on day 9 of life. His second open heart repair was not anticipated to be needed until two or three years of age. Ty had other plans. We spent the vast majority of his first 3 months of life at Vanderbilt as he went into heart failure and was diagnosed with pulmonary hypertension. As a result, the medical team concluded that he needed the repair much sooner than usually recommended, and at just shy of 3 months old Ty underwent his second life saving open heart surgery. God has already worked so many miracles in Ty's life and the life of our family and we know he is using our story. Because of this, we are grateful for Ty's special heart and feel beyond blessed that God chose us to travel this road. We ask for prayers as Ty continues to heal. We are praying for a full recovery and life without restrictions for Ty. We are praying for God to use our family and Ty for His glory.

Thank you to each and every person who supports us through prayer, giving, or just by loving on our family! We are humbled and blessed by all of the ways the Lord is providing for us and know that he is using Ty and his story to do great things!

Thursday, March 26, 2015

Day 3 with Ty

This little guy was referred to as "amazing" this morning by the cardiologist!  He is doing so well.  He hasn't had to have any oxygen since he was born, his vitals have all remained strong and healthy.  His temperature was elevated once, and that can be a result of the meds keeping his heart happy, but they are doing a culture just to be sure.  His temp came down and has remained "normal" all day, so we are encouraged.  After his echo yesterday, they have chosen Dr. Mettler as his surgeon and determined that it will be best to do a front-entry "open heart" approach to his coarc repair.  This means we'll be here for at least 2 weeks.  The echo also revealed that the hole in his lower chambers has been completely self-corrected.  It doesn't quite look the same as you or me, but tissue has filled in the gap and the two chambers are separate and should remain that way as he grows. Way to go God - thank you and praise you!  This leaves him with a hole in the upper chambers and a cleft in the valve - all repairable by open heart surgery that may not even need to happen until age 2 or 3!  Thank you Lord - you are amazing!  So overall, we are very pleased.

And then....

...this happened!  He is doing so crazy good they decided he could get up and attempt to breast feed!  He was sleeping and uninterested, but I enjoyed holding him still the same!  This was certainly a fantastic day!  

Thank each of you for all of the ways you are loving and supporting us.  Thank you most of all for all of the prayers!  We hope to keep the good news rolling in!  Our little Ty is clearly a fighter!


Shirley said...

Oh good news! Will keep praying for him!