Tyson Hugh Hooper

Tyson Hugh Hooper
Our son, Tyson Hugh Hooper, was born with coarctation of the aorta, hypoplastic arch, and a transitional avsd. His first open heart surgery reconstructed his aorta and was on day 9 of life. His second open heart repair was not anticipated to be needed until two or three years of age. Ty had other plans. We spent the vast majority of his first 3 months of life at Vanderbilt as he went into heart failure and was diagnosed with pulmonary hypertension. As a result, the medical team concluded that he needed the repair much sooner than usually recommended, and at just shy of 3 months old Ty underwent his second life saving open heart surgery. God has already worked so many miracles in Ty's life and the life of our family and we know he is using our story. Because of this, we are grateful for Ty's special heart and feel beyond blessed that God chose us to travel this road. We ask for prayers as Ty continues to heal. We are praying for a full recovery and life without restrictions for Ty. We are praying for God to use our family and Ty for His glory.

Thank you to each and every person who supports us through prayer, giving, or just by loving on our family! We are humbled and blessed by all of the ways the Lord is providing for us and know that he is using Ty and his story to do great things!

Friday, June 26, 2015

Stay a little longer...

We are ready to take our little man home... and they are ready to send us home... but in typical Ty fashion, he is changing our plans!

Yesterday they *almost* sent us home, but he had a couple of low blood pressure reading and we needed to tweak his blood pressure medication a little and watch him over night.  On the new dose, we have watched today and his pressures are still low, little stinker.  No cause for concern, his repair is great and is echo looks terrific, it is just the human element - finding the right dosage of the right prescriptions.  So as of just a few minutes ago, they decided we better stay the night again.  We are dropping one of his diuretics and reducing his other diuretic (yay!) and leaving his bp med at the new lower dose to see if that does the trick!  Eventually we'll hit the perfect combination for our little guy and we'll get to go home!

In other news, post surgery #2, Ty wants nothing to do with his bottle.  We are having to do all his food through his tube.  Today we tried waiting longer to get him nice and hungry and put some vanilla flavoring in his formula to help with the taste... he was slightly more receptive, but still only took 2 ml.  After all we have been through, having to use the feeding tube is not that big of a deal, but I'd still like to ask for prayers that Ty will begin to want to take more from his bottle. We are anxious to see him do all the "normal" baby things.

I wake up every morning with a song in my heart - singing praises to our Lord for the wonderful work he has done in Ty!  I can't say it enough - Praise the Lord!  He is Good.  We are blessed.