We are ready to take our little man home... and they are ready to send us home... but in typical Ty fashion, he is changing our plans!
Yesterday they *almost* sent us home, but he had a couple of low blood pressure reading and we needed to tweak his blood pressure medication a little and watch him over night. On the new dose, we have watched today and his pressures are still low, little stinker. No cause for concern, his repair is great and is echo looks terrific, it is just the human element - finding the right dosage of the right prescriptions. So as of just a few minutes ago, they decided we better stay the night again. We are dropping one of his diuretics and reducing his other diuretic (yay!) and leaving his bp med at the new lower dose to see if that does the trick! Eventually we'll hit the perfect combination for our little guy and we'll get to go home!
In other news, post surgery #2, Ty wants nothing to do with his bottle. We are having to do all his food through his tube. Today we tried waiting longer to get him nice and hungry and put some vanilla flavoring in his formula to help with the taste... he was slightly more receptive, but still only took 2 ml. After all we have been through, having to use the feeding tube is not that big of a deal, but I'd still like to ask for prayers that Ty will begin to want to take more from his bottle. We are anxious to see him do all the "normal" baby things.
I wake up every morning with a song in my heart - singing praises to our Lord for the wonderful work he has done in Ty! I can't say it enough - Praise the Lord! He is Good. We are blessed.