Tyson Hugh Hooper

Tyson Hugh Hooper
Our son, Tyson Hugh Hooper, was born with coarctation of the aorta, hypoplastic arch, and a transitional avsd. His first open heart surgery reconstructed his aorta and was on day 9 of life. His second open heart repair was not anticipated to be needed until two or three years of age. Ty had other plans. We spent the vast majority of his first 3 months of life at Vanderbilt as he went into heart failure and was diagnosed with pulmonary hypertension. As a result, the medical team concluded that he needed the repair much sooner than usually recommended, and at just shy of 3 months old Ty underwent his second life saving open heart surgery. God has already worked so many miracles in Ty's life and the life of our family and we know he is using our story. Because of this, we are grateful for Ty's special heart and feel beyond blessed that God chose us to travel this road. We ask for prayers as Ty continues to heal. We are praying for a full recovery and life without restrictions for Ty. We are praying for God to use our family and Ty for His glory.

Thank you to each and every person who supports us through prayer, giving, or just by loving on our family! We are humbled and blessed by all of the ways the Lord is providing for us and know that he is using Ty and his story to do great things!

Sunday, May 17, 2015

The unexpected...

I have had to look back at my last post a few times in the last few days to remind myself:

"He'll get us through all of the worsts.  When the worst turns even more worse, He'll still be there.  He still has a plan.  He is good all the time.  He is the best and the only and all we need.  Safe in Him is the best feeling in the world."

On Friday afternoon we found out that my amazing Mom has begun her battle against breast cancer.  I went to bed fighting worry for her and my dad and worry for Ty, not to mention my ever present underlying worry about Chris and the girls and what effect this is having on all of us..  I actually packed a hospital bag before bed... I just had a feeling.  Sure enough, at 3 AM I found myself in the car on the way to Vanderbilt Children's again.  This morning I am blogging bedside - Ty is snoozing beside me in room 3 and I'm thinking about our awesome God and my Mom and baby Ty and this whirlwind we have lived in the past few weeks.

Ty is okay.  He is doing well, as he always does when we are here, and is well taken care of.  He's a mystery we can't quite figure out.  He respiration was too high and sats were too low at home.  He'll have another swallow study tomorrow to see if it is related to eating or aspiration.  In the mean time, we are hanging out for observation.

It is really my mom I wanted to post about this morning.  I have asked so often for constant prayer for my son, and now I come to ask for prayers for my mom.  One thing in life that you truly can't over do or have too much of is prayer.  So I ask you to join me in praying for my mom daily or hourly or however often you think of her or are led to pray for her.

My mom is, quite possibly, the most generous person I have ever known.  She is compassionate.  She is a nurturer and takes care of everyone around her with equal enthusiasm and effort, from her own children to the children she graciously serves as teacher, comforter, and fill-in mom.  She is strong and gives everything 110%.  Mom is the kind of person that goes above and beyond - always.

My mom is also a woman of faith.  It is with a positive attitude and faith in our God that she has received the news that a mass in her breast is malignant.  The lab report was very discouraging, but she has taken it all in stride.  She will meet with her doctor this week to discuss treatment options and we fully intend for God to beat this thing!

For every person that reads this and has (or will) say even one prayer for Ty or for my mom, I thank you from the bottom of my heart.  

This morning I had "Bring the Rain" in my mind.  The chorus played in my head over and over...
Bring me joy, bring me peace
Bring the chance to be free
Bring me anything that brings You glory
And I know there'll be days
When this life brings me pain
But if that's what it takes to praise You
Jesus, bring the rain

Click here to hear the whole song.  It's my song for today.


Connie Shannon said...

Sooo sorry to hear about your Mom! Ty has been and continues to be in our prayers ( don't know if you know it but April works in the NICU at Children's in Birmingham with sweet struggling babies like Ty) We will sure add your Mom to our prayers. Love all of you!

Sandi McDaniel said...

Continued prayers for all of you......your Mom is absolutely beautiful! Your rock solid faith is the only thing that can bring you peace......love you!