They doctors may have solved Ty's mysterious symptoms. Bless his heart (literally and figuratively). His BNP level was at 3,000 (normal is under 100). BNP is an indicator of degree of heart failure. The problem is, with a BNP that high, he should be one foot in the grave, not grinning and pink as a piglet like he is. So yesterday we really dug in and started looking harder. Now they think Ty may have Pulmonary Hypertension. I know the worst possible reaction to this news is google, but I went there anyway. The more I look the more desperate the situation appears - like talk of life expectancy and heart/lung transplantation. I know that is the worst case scenario, but Ty seems to find (and embrace) even the smallest odds. Only 1% of babies are born in heart disease - way to go baby boy, making sure you are unique for sure. Our geneticist only found about 56 documented cases of babies with Ty's genetic mutation and make up... I can't even put a percent on the chances of having that it's so small. Ty nailed it. So forgive me if, for just a moment, I hang my head in dread when I see the tiny percent chances of #1 an infant even having pulmonary hypertension and #2 the fact that there is no known cure. I'm speechless and telling myself that God is in control and I need to wait and talk tot he doctors after rounds before I freak out. If you could, please say an extra prayer or 2 (or 2,000) for us today. This Mama needs answers and a plan.
God, please help me be patient and trust you and praise you in midst of the unknown.
And with that, I leave you with another song. My song for today:
Click here to listen to it or read the lyrics below. So fitting.