Tyson Hugh Hooper

Tyson Hugh Hooper
Our son, Tyson Hugh Hooper, was born with coarctation of the aorta, hypoplastic arch, and a transitional avsd. His first open heart surgery reconstructed his aorta and was on day 9 of life. His second open heart repair was not anticipated to be needed until two or three years of age. Ty had other plans. We spent the vast majority of his first 3 months of life at Vanderbilt as he went into heart failure and was diagnosed with pulmonary hypertension. As a result, the medical team concluded that he needed the repair much sooner than usually recommended, and at just shy of 3 months old Ty underwent his second life saving open heart surgery. God has already worked so many miracles in Ty's life and the life of our family and we know he is using our story. Because of this, we are grateful for Ty's special heart and feel beyond blessed that God chose us to travel this road. We ask for prayers as Ty continues to heal. We are praying for a full recovery and life without restrictions for Ty. We are praying for God to use our family and Ty for His glory.

Thank you to each and every person who supports us through prayer, giving, or just by loving on our family! We are humbled and blessed by all of the ways the Lord is providing for us and know that he is using Ty and his story to do great things!

Saturday, April 4, 2015

Day 11: quick update

Ty has had such a great day!!!!  

We showed up this morning late and missed rounds for the first time in 11 days.  We came in to a much less puffy Ty who had been peeing like a champ all night!  Thanks, no doubt, to answered prayers, he had a very stable night and got rid of a lot of his excess fluid!  In addition, his sweet nurse had played dress up!  She found his diaper bag and had him in a hat, socks, and snuggled next to his bear!

 Today has been a great day and we have seen steady progress.  He has continued to void fluid, his catheter was removed, he got breast milk through a nasal feeding tube placed this morning and is about to increase that.  He has been breathing over the ventilator and is currently in the middle of his first c-pap trial (where they turn the vent all the way down and let him do all the breathing on his own to see how he does for an hour).  He will do a few c-pap trials over the course of tonight and if he does as awesome as he is on this first one, He'll come off the vent in the wee hours of tomorrow morning.  What an Easter blessing that would be!

They came in with meds at one point today that had run low and the nurse offhandedly commented, "There's angels in this room."  I thought, you have no idea how true that is!  At evening rounds just now the doc said, "He's a champ!"  What a great day of progress this has been.  I am sure there will be ups and downs, but I am so pleased with today.  

Thank you Jesus for hearing and answering our prayers for a stable night and for lots of pee pee.  Thank you also, Father, for a great day full of progress.  We can't wait to celebrate Ty's first Easter tomorrow and to get to spend time with Ava Grace as well.  Please bless us with safety as we travel to get her and with another stable night with lots of progress for Ty.  Amen.