Tyson Hugh Hooper

Tyson Hugh Hooper
Our son, Tyson Hugh Hooper, was born with coarctation of the aorta, hypoplastic arch, and a transitional avsd. His first open heart surgery reconstructed his aorta and was on day 9 of life. His second open heart repair was not anticipated to be needed until two or three years of age. Ty had other plans. We spent the vast majority of his first 3 months of life at Vanderbilt as he went into heart failure and was diagnosed with pulmonary hypertension. As a result, the medical team concluded that he needed the repair much sooner than usually recommended, and at just shy of 3 months old Ty underwent his second life saving open heart surgery. God has already worked so many miracles in Ty's life and the life of our family and we know he is using our story. Because of this, we are grateful for Ty's special heart and feel beyond blessed that God chose us to travel this road. We ask for prayers as Ty continues to heal. We are praying for a full recovery and life without restrictions for Ty. We are praying for God to use our family and Ty for His glory.

Thank you to each and every person who supports us through prayer, giving, or just by loving on our family! We are humbled and blessed by all of the ways the Lord is providing for us and know that he is using Ty and his story to do great things!

Saturday, February 11, 2012

Random weekend post...

I bathed Ava Grace this morning.  We are learning to love bath time!  Today she seemed to enjoy the whole thing... even the hair washing!  Afterward when I wrapped her sweet smelling self in a baby towel to dry her off and held her close to me and looked in her eyes she gave me a HUGE Mommy-I-love-you smile!  Then, I felt the warm pee pee soaking through her towel and dripping onto the floor.  I guess it was actually a Mommy-I'm-going-pee-pee-and-it's-warm-and-feels-so-good smile!  :-)  I laughed.

Our sweet little girl is one month old today.  Hard to believe.  I am going to do a post on our trip to Chattanooga for Ava Grace to meet the rest of my side of the family and a one month post this week when I have more time to load pictures.  In the mean time, some things I have learned in our first month...
Swaddlers are WONDERFUL!  We put Ava Grace in a swaddler every night and it really helps her sleep.  I think it keeps her from waking herself up with her hands for the most part... and keeps her warm.  Although she is a little escape artist and often gets her hands or an arm out at some point between feedings!

Today we learned that the battery powered nasal aspirator is awesome!  I am so buying this as a baby gift next time I got to a shower!  Last night Lily developed a fever and started feeling really bad, I started sneezing and getting a runny nose, and this morning Ava Grace woke up with a stuffy nose!  She HATES the bulb syringe we were using to help her little nose, so I broke out the battery powered one to give it a try.  It's loud, and vibrates, and I though it would scare her to death.  Wouldn't you know she didn't so much as squeak and it sure sucked everything right out of her little nose!  :-)  Loving it! 

We settled on Nuk pacifiers this week!  YAY, no more giant ugly hospital paci! lol.  And this baby girl LOVES her paci!  Haha

I have also learned, if you like your babies cute clothes, you can't have enough bibs! lol.  You also can't have enough baby blankets or enough burp clothes, lol.

And, after one month, I have to share (a little proudly) that I have shed 15 pounds (obviously mostly water and baby) and have 11 pounds to go to be back at my pre pregnancy weight!  I am ready to get back into some regular clothes... my maternity jeans won't stay up and my pre pregnancy jeans are just shy of buttoning! lol.  Hopefully by the end of the month I'll be getting back into my old wardrobe!  ;-)

Hope you are all having a great weekend!  We are enjoying ours, even with germs!


Sarah said...

sweet post. It always amazes me how thing change with babies for each generation. I'm talking about gadgets and tools, etc. And I don't even know what I'm talking about! Glad she's learning to like bathes. That will make the rest of her life easier!