Tyson Hugh Hooper

Tyson Hugh Hooper
Our son, Tyson Hugh Hooper, was born with coarctation of the aorta, hypoplastic arch, and a transitional avsd. His first open heart surgery reconstructed his aorta and was on day 9 of life. His second open heart repair was not anticipated to be needed until two or three years of age. Ty had other plans. We spent the vast majority of his first 3 months of life at Vanderbilt as he went into heart failure and was diagnosed with pulmonary hypertension. As a result, the medical team concluded that he needed the repair much sooner than usually recommended, and at just shy of 3 months old Ty underwent his second life saving open heart surgery. God has already worked so many miracles in Ty's life and the life of our family and we know he is using our story. Because of this, we are grateful for Ty's special heart and feel beyond blessed that God chose us to travel this road. We ask for prayers as Ty continues to heal. We are praying for a full recovery and life without restrictions for Ty. We are praying for God to use our family and Ty for His glory.

Thank you to each and every person who supports us through prayer, giving, or just by loving on our family! We are humbled and blessed by all of the ways the Lord is providing for us and know that he is using Ty and his story to do great things!

Tuesday, March 6, 2012

Red in the face...And Menu Plan

I have been meaning to post this for two weeks.  I told a couple people I would post the pictures, plus I wanted to document, but as you moms out there know, life gets crazy busy!

A couple of weeks ago when we thought Ava Grace had a cold, we took her to the pediatrician.  We also thought she was having some pretty serious baby eczema!  These pictures were taken a couple days before we went to the doctor - before the "eczema" got to it's worst!
(Ava Grace still frantically works at finding and sucking her thumb {and fingers}, and on this day found her thumb for a few moments and sucked happily until her arm involuntarily ripped it from her mouth, lol)

After our visit from the doctor, we found out she didn't have a cold after all... or eczema {it was a nasty rash - check out that forehead and those red cheeks - remember this was "mild" compared to what she looked like when I took her to the doctor}!  She has a milk protein allergy - really it's just a sensitivity that she will outgrow! The doc changed her to super duper expensive formula, but says in a couple months we can probably ween her off of it and back down to the less expensive formula after her little digestive system develops a little more!
Even when she's red in the face, isn't she a little cutie!

FYI:  I have an obsession with outfits with ruffles on the butt!

What a little cutie we have!
These pictures are when her smiles were still a work in progress, lol
It's funny, because it's only been two weeks since these were taken and she smiles SO MUCH now and has more hair and smooth face now!
After I took these pictures, she began to drift off and I decided to try a little art project...

Do you know how hard it is to get an infant to open a hand long enough to get paint on it... and then to get it stamped?  Yeah... harder than I thought!  I'll be trying again for a better one soon! Getting all the paint off her hand and out from between her fingers was even more interesting!  Haha!

And, I know this picture looks weird, but I had to take a picture of that soft little head!  It's one of my favorite parts of her... especially when she's on my shoulder and nuzzles her little fuzzy head against my cheek!  So sweet!


For Menu Monday (on Tuesday) {again}
There are a couple repeats from last week... had to tweak last week's to accommodate our busy schedule!  ;-)

Pork Tenderloin with Potatoes Gratin and Green Beans

Parmesan Crusted Chicken Fingers with Pasta and Marinara

Roasted Chicken with sweet potatoes and green beans

Pasta A La Betsey

Craft Brunch with the girls!
Burgers and Potato Salad for dinner

Pasta Primavera


Sarah said...

poor baby! glad it was a simple fix, even though an expensive one! Her Uncle Malcolm is always telling me you get what you pay for. I know there is some truth in that, though not in all things. Loved the pictures! She sure is growing!